lilstargirl

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  • the jaw surgery – post-op edition

    the jaw surgery – post-op edition

    This is the story of my double jaw surgery.  Day One. We arrived at the hospital at 5AM.  I had just picked up my mom at the airport the day before – she had flown in all the way from Dublin, Ireland, specifically for the surgery. My brother Frankie drove us to the hospital, and Read more

  • the pool

    the pool

    I love the pool. When I was a kid, my mom would bring my brother and me swimming. For many years, we’d spend Saturday mornings packing our goggles and road trip essentials (snacks, stuffies, iPod, GameBoy). The nearest warm-water therapeutic pool was in sunny Palo Alto, a town about an hour away. I always looked Read more

  • ‘disabled’

    ‘disabled’

    What comes to mind when you hear the word ‘disabled’? An old lady: gray hair and rocking chair? A military vet: years overseas, an amputee? A child: wheelchair-bound, hospital gown? Disabled: impaired or limited by a physical, mental, cognitive, or developmental condition: affected by disability Every morning at 7:30AM, I wake up and grab my sock Read more

  • supercharged

    supercharged

    I purchased a hyper potion at the PokéMart about three months ago.  (Technically, its official name is Kevzara, and I got it from CVS Specialty Pharmacy—but that’s boring. Bear with me as I romanticize my biweekly injection, and pretend I’m living in Pallet Town.) I’ve had a hard time with injections in the past. When Read more

  • the jaw surgery.

    the jaw surgery.

    I’d say it began in seventh grade. A remarkably difficult time for us all, I know. But unlike my friends at school, I was facing severe and rapidly progressing jaw joint degeneration, amongst a landslide of other Arthritis-related difficulties.  Puberty sped up what was already present. It accelerated the active inflammation in my body, attacking Read more

  • the flare game

    the flare game

    Let’s play a game.  Your knees are hot and swollen, and standing up for too long hurts. However, your ankles are really starting to lose mobility the longer you stay off your feet. Your fingers and wrist are also inflamed, but it’s hard to tell if it’s Arthritis related or from staying up all night Read more